{"id":14533,"date":"2021-07-13T09:48:07","date_gmt":"2021-07-13T07:48:07","guid":{"rendered":"http:\/\/serveiseducatius.xtec.cat\/baixpenedes\/?p=14533"},"modified":"2021-07-13T09:56:45","modified_gmt":"2021-07-13T07:56:45","slug":"malalties-minoritaries-lunivers-divers","status":"publish","type":"post","link":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/general\/malalties-minoritaries-lunivers-divers\/","title":{"rendered":"MALALTIES MINORIT\u00c0RIES: “L’UNIVERS DIVERS”"},"content":{"rendered":"

Segur que m\u00e9s d’un\/-a esteu valorant propostes de lectura per a Prim\u00e0ria de cara al curs 21-22. S\u00f3n moments de revisar com estem tractant la inclusi\u00f3 i de valorar altres materials que ens<\/p>\n

poden ajudar a treballar la dimensi\u00f3 de la diversitat i inclusi\u00f3 a les nostres aules.<\/p>\n

Us volem compartir el llibre que la mestra i logopeda de T\u00e0rrega ,Alba Bellart Castellv\u00ed ha redactat i ha estat il.lustrat per la seva villa , N\u00faria Us\u00f3n Bellart. “L\u2019univers divers”<\/a> \u00e9s el primer llibre<\/p>\n

editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 (IRBLleida<\/a>) per visibilitzar, conscienciar i canviar la mirada davant del m\u00f3n de les malalties minorit\u00e0ries. Els beneficis<\/p>\n

obtinguts per la venda del llibre, que ja es pot comprar a les llibreries i tamb\u00e9 f\u00edsicament a l\u2019IRBLleida per 10\u20ac, es destinaran a la recerca en malalties minorit\u00e0ries realitzada per personal<\/p>\n

investigador de l\u2019IRBLleida.<\/p>\n

 <\/p>\n

\"\"<\/a>L\u2019autora \u00e9s mare d\u2019una filla amb una malaltia minorit\u00e0ria i amb inquietuds per trobar millors respostes per aquest tipus de malalties. \u201cM\u2019ha agradat escriure aquest llibre com a eina terap\u00e8utica per transmetre tot el que conec sobre el tema, perqu\u00e8 la vida de les persones i les seves fam\u00edlies puguin estar plenes de m\u00e9s esperan\u00e7a\u201d ha explicat l\u2019autora. \u201cGr\u00e0cies a la compra d\u2019aquest exemplar, contribuireu perqu\u00e8 la mirada integradora i l\u2019aposta per la recerca avancin\u201d, ha afegit.El llibre, que est\u00e0 adre\u00e7at a nens i nenes de sis a dotze anys, explica que els alumnes d\u2019una escola de prim\u00e0ria celebren Sant Jordi i fan un concurs literari dedicat a les malalties rares o infreq\u00fcents. Cada curs, des de primer fins a sis\u00e8, elabora un conte diferent, per\u00f2 amb un denominador com\u00fa, ja que tots els i les protagonistes tenen una malaltia d\u2019aquest tipus.<\/p>\n

Es podria valorar aquest llibre des de dues vessants i serien:<\/p>\n

-llegir-lo com a lectura obligat\u00f2ria en algun curs del Cicle Mitj\u00e0 o Superior de Prim\u00e0ria del centre.<\/p>\n

-fer un treball d\u00b4educaci\u00f3 emocional (valors i emocions continguts en els diferents contes) a cada curs de l’escola.<\/p>\n

Es podria realitzar a l’hora de tutoria.<\/p>\n

Amb alguna d\u00b4aquestes propostes es podria ajudar a aconseguir tres objectius del projecte( a part de fomentar l’entusiasme per la lectura que tant feu els centres):<\/p>\n

\n

– visibilitzar i normalitzar les malalties rares en la inf\u00e0ncia.- fer un treball emocional de com poder afrontar millor una malaltia cr\u00f2nica.(malalties minorit\u00e0ries o d’altres com el c\u00e0ncer infantil, diabetis…).<\/p>\n

– promoure m\u00e9s la recerca m\u00e8dica en aquest tipus de patologies, essent benefici\u00f3s que la investigaci\u00f3 tamb\u00e9 es pogu\u00e9s realitzar en un centre de proximitat.(Institut de Recerca Biom\u00e8dica de Lleida).<\/p>\n

<\/div>\n<\/div>\n
L’Alba Bellart s’ha ofert , si\u00a0 les restriccions del covid aix\u00ed ho permeten, a venir a les nostres escoles a fer un taller d’educaci\u00f3 emocional sobre les malalties rares o infreq\u00fcents. A part del llibre<\/div>\n
<\/div>\n
“L’univers divers” , hi ha un nou conte ” La s\u00e0via Solid\u00e0ria i els seus fanals” per realitzar-lo .<\/div>\n
\n
<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Segur que m\u00e9s d’un\/-a esteu valorant propostes de lectura per a Prim\u00e0ria de cara al curs 21-22. S\u00f3n moments de revisar com estem tractant la inclusi\u00f3 i de valorar altres materials que ens poden ajudar a treballar la dimensi\u00f3 de la diversitat i inclusi\u00f3 a les nostres aules. Us volem compartir el llibre que la […]<\/p>\n","protected":false},"author":7,"featured_media":14534,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[66,426,1,427,29,370],"tags":[],"class_list":["post-14533","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dinamitzacio","category-drets-dels-infants","category-general","category-llengua-catalana","category-portada","category-recursos"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/posts\/14533","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/comments?post=14533"}],"version-history":[{"count":3,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/posts\/14533\/revisions"}],"predecessor-version":[{"id":14540,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/posts\/14533\/revisions\/14540"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/media\/14534"}],"wp:attachment":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/media?parent=14533"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/categories?post=14533"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixpenedes\/wp-json\/wp\/v2\/tags?post=14533"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}