{"id":9919,"date":"2017-02-28T11:29:21","date_gmt":"2017-02-28T10:29:21","guid":{"rendered":"http:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/?p=9919"},"modified":"2017-02-28T11:29:53","modified_gmt":"2017-02-28T10:29:53","slug":"dia-mundial-de-les-malalties-minoritaries-2017","status":"publish","type":"post","link":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/se-baixllobregat6\/dia-mundial-de-les-malalties-minoritaries-2017\/","title":{"rendered":"Dia mundial de les malalties minorit\u00e0ries 2017"},"content":{"rendered":"<p><iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/j4uonDZOdH4\" width=\"560\" height=\"315\" frameborder=\"0\"><\/iframe><\/p>\n<p><strong><strong><strong><strong>\u00a0<\/strong><\/strong><\/strong><\/strong><\/p>\n<p><strong><strong><strong><strong>Una malaltia minorit\u00e0ria \u00e9s una malaltia greu, poc freq\u00fcent i que afecta a un nombre redu\u00eft de persones.<\/strong><\/strong><\/strong><\/strong> L&#8217;exist\u00e8ncia de tantes malalties, amb pocs pacients per a cadascuna, les fan poc conegudes tamb\u00e9 per als professionals de la medicina. Sovint el pacient i les seves fam\u00edlies han de passar per desenes de proves i visitar nombrosos especialistes fins a tenir un diagn\u00f2stic definitiu.<!--more--><\/p>\n<table border=\"0\">\n<tbody>\n<tr>\n<td><\/td>\n<td><strong><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/www.malaltiesminoritaries.org\/portal1\/IMAGES\/CONTENT\/ICONO_MM.JPG\" alt=\"\" width=\"6\" height=\"6\" \/> Hi ha m\u00e9s de 7.000 malalties minorit\u00e0ries<br \/>\n<\/strong><br \/>\n<strong><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/www.malaltiesminoritaries.org\/portal1\/IMAGES\/CONTENT\/ICONO_MM.JPG\" alt=\"\" width=\"6\" height=\"6\" \/>\u00a0Afecten a 5 de cada 10.000 persones<\/strong><strong><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/www.malaltiesminoritaries.org\/portal1\/IMAGES\/CONTENT\/ICONO_MM.JPG\" alt=\"\" width=\"6\" height=\"6\" \/>\u00a0Hi ha 400.000 catalans afectats<\/strong><\/p>\n<p><strong><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/www.malaltiesminoritaries.org\/portal1\/IMAGES\/CONTENT\/ICONO_MM.JPG\" alt=\"\" width=\"6\" height=\"6\" \/>\u00a0Al voltant del 80% s\u00f3n d&#8217;origen gen\u00e8tic<\/strong><\/p>\n<p><strong><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/www.malaltiesminoritaries.org\/portal1\/IMAGES\/CONTENT\/ICONO_MM.JPG\" alt=\"\" width=\"6\" height=\"6\" \/>\u00a0Poden afectar el 3-4% dels nounats<\/strong><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>Generalment impliquen diversos \u00f2rgans i afecten les capacitats f\u00edsiques, habilitats mentals, i les qualitats sensorials i de comportament dels malalts. L&#8217;afecci\u00f3 pot ser visible des del naixement o la infantesa, per\u00f2 n&#8217;hi ha que no apareixen fins a l&#8217;edat adulta. S\u00f3n malalties greus o molt greus, cr\u00f2niques i generalment degeneratives. <strong><strong><strong><strong>Tot i que en la majoria dels casos no existeix un tractament definitiu, s\u00ed que es pot aconseguir una millora en la qualitat i esperan\u00e7a de vida d&#8217;aquests pacients.<\/strong><\/strong><\/strong><\/strong><\/p>\n<p>Aquesta Jornada est\u00e0 adre\u00e7ada a Regidors de Salut, Serveis Socials i d\u2019Educaci\u00f3, caps de servei d\u2019ajuntaments, representants d\u2019associacions d\u2019afectats de Malalties Minorit\u00e0ries, treballadors i educadors socials i professionals sanitaris interessats en les Malalties Minorit\u00e0ries.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u00a0 Una malaltia minorit\u00e0ria \u00e9s una malaltia greu, poc freq\u00fcent i que afecta a un nombre redu\u00eft de persones. L&#8217;exist\u00e8ncia de tantes malalties, amb pocs pacients per a cadascuna, les fan poc conegudes tamb\u00e9 per als professionals de la medicina. Sovint el pacient i les seves fam\u00edlies han de passar per desenes de proves i [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":9920,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1040,29],"tags":[410,1748,45,939],"class_list":["post-9919","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-diversitat-en-xarxa","category-se-baixllobregat6","tag-diversitat","tag-malalties-minoritaries","tag-salut","tag-solidaritat"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts\/9919","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/comments?post=9919"}],"version-history":[{"count":2,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts\/9919\/revisions"}],"predecessor-version":[{"id":9922,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts\/9919\/revisions\/9922"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/media\/9920"}],"wp:attachment":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/media?parent=9919"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/categories?post=9919"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/tags?post=9919"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}