{"id":21528,"date":"2021-06-18T09:32:08","date_gmt":"2021-06-18T07:32:08","guid":{"rendered":"http:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/?p=21528"},"modified":"2021-06-18T09:34:59","modified_gmt":"2021-06-18T07:34:59","slug":"lunivers-divers-el-primer-llibre-de-lirblleida-per-visibilitzar-i-conscienciar-sobre-les-malalties-minoritaries","status":"publish","type":"post","link":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/se-baixllobregat6\/lunivers-divers-el-primer-llibre-de-lirblleida-per-visibilitzar-i-conscienciar-sobre-les-malalties-minoritaries\/","title":{"rendered":"\u2018L\u2019univers divers\u2019, el primer llibre de l\u2019IRBLleida per visibilitzar i conscienciar sobre les malalties minorit\u00e0ries"},"content":{"rendered":"

\"\"L\u2019univers divers\u2019 \u00e9s el primer llibre editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 (IRBLleida<\/a>) per visibilitzar, conscienciar i canviar la mirada davant del m\u00f3n de les malalties minorit\u00e0ries. Els beneficis obtinguts per la venda del llibre, que ja es pot comprar a les llibreries i tamb\u00e9 f\u00edsicament a l\u2019IRBLleida per 10\u20ac, es destinaran a la recerca en malalties minorit\u00e0ries realitzada per personal investigador de l\u2019IRBLleida.<\/p>\n

L\u2019autora de l\u2019obra \u00e9s mestra i logopeda de T\u00e0rrega, Alba Bellart Castellv\u00ed. Bellart \u00e9s mare d\u2019una filla amb una malaltia minorit\u00e0ria i amb inquietuds per trobar millors respostes per aquest tipus de malalties. \u201cM\u2019ha agradat escriure aquest llibre com a eina terap\u00e8utica per transmetre tot el que conec sobre el tema, perqu\u00e8 la vida de les persones i les seves fam\u00edlies puguin estar plenes de m\u00e9s esperan\u00e7a\u201d ha explicat l\u2019autora. \u201cGr\u00e0cies a la compra d\u2019aquest exemplar, contribuireu perqu\u00e8 la mirada integradora i l\u2019aposta per la recerca avancin\u201d, ha afegit.<\/p>\n

El llibre, que est\u00e0 adre\u00e7at a nens i nenes dels cicles mitj\u00e0 i superior d’Educaci\u00f3 prim\u00e0ria, explica que els alumnes d\u2019una escola de prim\u00e0ria celebren Sant Jordi i fan un concurs literari dedicat a les malalties rares o infreq\u00fcents. Cada curs, des de primer fins a sis\u00e8, elabora un conte diferent, per\u00f2 amb un denominador com\u00fa, ja que tots els i les protagonistes tenen una malaltia d\u2019aquest tipus. Les il\u00b7lustracions del llibre s\u00f3n una obra de la filla de l\u2019autora, N\u00faria Us\u00f3n Bellart.<\/p>\n

Bellart proposa combinar la lectura amb el treball d’aquests tres objectius:<\/p>\n

–\u00a0Visibilitzar i normalitzar les malalties rares en la inf\u00e0ncia<\/b>.<\/p>\n

–\u00a0Fer un treball emocional de com poder afrontar millor una malaltia cr\u00f2nica\u00a0<\/b>(malalties minorit\u00e0ries o d’altres com el c\u00e0ncer infantil, diabetis…).<\/p>\n

–\u00a0Promoure m\u00e9s la recerca m\u00e8dica en aquest tipus de patologies, essent benefici\u00f3s que la investigaci\u00f3 tamb\u00e9 es pogu\u00e9s realitzar en un centre de proximitat (Institut de Recerca Biom\u00e8dica de Lleida)<\/b><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

L\u2019univers divers\u2019 \u00e9s el primer llibre editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 (IRBLleida) per visibilitzar, conscienciar i canviar la mirada davant del m\u00f3n de les malalties minorit\u00e0ries. Els beneficis obtinguts per la venda del llibre, que ja es pot comprar a les llibreries i tamb\u00e9 f\u00edsicament a l\u2019IRBLleida per 10\u20ac, […]<\/p>\n","protected":false},"author":1,"featured_media":21529,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"categories":[1078,29],"tags":[222,1436,2681,311,312,446,2684,2683,100,2682,1748,2680],"class_list":["post-21528","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-informacions","category-se-baixllobregat6","tag-alumnes","tag-biblioreport","tag-biomedicina","tag-cicle-mitja","tag-cicle-superior","tag-educacio-primaria","tag-fundacio-dr-pifarre","tag-institut-de-recerca-biomedica-de-lleida","tag-lectura","tag-lleida","tag-malalties-minoritaries","tag-nuria-uson-bellart"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts\/21528","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/comments?post=21528"}],"version-history":[{"count":3,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts\/21528\/revisions"}],"predecessor-version":[{"id":21533,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/posts\/21528\/revisions\/21533"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/media\/21529"}],"wp:attachment":[{"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/media?parent=21528"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/categories?post=21528"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat6\/wp-json\/wp\/v2\/tags?post=21528"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}