{"id":19553,"date":"2021-06-28T20:38:03","date_gmt":"2021-06-28T18:38:03","guid":{"rendered":"http:\/\/serveiseducatius.xtec.cat\/baixllobregat5\/?p=19553"},"modified":"2021-06-19T20:43:02","modified_gmt":"2021-06-19T18:43:02","slug":"lunivers-divers-el-primer-llibre-de-lirblleida-per-visibilitzar-i-conscienciar-sobre-les-malalties-minoritaries","status":"publish","type":"post","link":"https:\/\/serveiseducatius.xtec.cat\/baixllobregat5\/crp\/lunivers-divers-el-primer-llibre-de-lirblleida-per-visibilitzar-i-conscienciar-sobre-les-malalties-minoritaries\/","title":{"rendered":"\u2018L\u2019univers divers\u2019, el primer llibre de l\u2019IRBLleida per visibilitzar i conscienciar sobre les malalties minorit\u00e0ries"},"content":{"rendered":"

\"UniversL\u2019univers divers\u2019 \u00e9s el primer llibre editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 (IRBLleida<\/a>) per visibilitzar, conscienciar i canviar la mirada davant del m\u00f3n de les malalties minorit\u00e0ries. Els beneficis obtinguts per la venda del llibre, que ja es pot comprar a les llibreries i tamb\u00e9 f\u00edsicament a l\u2019IRBLleida per 10\u20ac, es destinaran a la recerca en malalties minorit\u00e0ries realitzada per personal investigador de l\u2019IRBLleida.<\/span><\/p>\n

L\u2019autora de l\u2019obra \u00e9s mestra i logopeda de T\u00e0rrega, Alba Bellart Castellv\u00ed. Bellart \u00e9s mare d\u2019una filla amb una malaltia minorit\u00e0ria i amb inquietuds per trobar millors respostes per aquest tipus de malalties.<\/p>\n

El llibre, que est\u00e0 adre\u00e7at a nens i nenes dels cicles mitj\u00e0 i superior d\u2019Educaci\u00f3 prim\u00e0ria, explica que els alumnes d\u2019una escola de prim\u00e0ria celebren Sant Jordi i fan un concurs literari dedicat a les malalties rares o infreq\u00fcents. Cada curs, des de primer fins a sis\u00e8, elabora un conte diferent, per\u00f2 amb un denominador com\u00fa, ja que tots els i les protagonistes tenen una malaltia d\u2019aquest tipus. Les il\u00b7lustracions del llibre s\u00f3n una obra de la filla de l\u2019autora, N\u00faria Us\u00f3n Bellart.<\/p>\n

Bellart proposa combinar la lectura amb el treball d\u2019aquests tres objectius:<\/p>\n

\u2013\u00a0Visibilitzar i normalitzar les malalties rares en la inf\u00e0ncia<\/b>.<\/p>\n

\u2013\u00a0Fer un treball emocional de com poder afrontar millor una malaltia cr\u00f2nica\u00a0<\/b>(malalties minorit\u00e0ries o d\u2019altres com el c\u00e0ncer infantil, diabetis\u2026).<\/p>\n

\u2013\u00a0Promoure m\u00e9s la recerca m\u00e8dica en aquest tipus de patologies, essent benefici\u00f3s que la investigaci\u00f3 tamb\u00e9 es pogu\u00e9s realitzar en un centre de proximitat (Institut de Recerca Biom\u00e8dica de Lleida)<\/b><\/p>\n","protected":false},"excerpt":{"rendered":"

L\u2019univers divers\u2019 \u00e9s el primer llibre editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 (IRBLleida) per visibilitzar, […]<\/p>\n","protected":false},"author":1,"featured_media":19554,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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