{"id":12784,"date":"2021-06-14T11:44:15","date_gmt":"2021-06-14T09:44:15","guid":{"rendered":"http:\/\/serveiseducatius.xtec.cat\/baixcamp\/?p=12784"},"modified":"2021-06-14T11:46:19","modified_gmt":"2021-06-14T09:46:19","slug":"lunivers-divers-llibre-per-conscienciar-sobre-les-malalties-minoritaries","status":"publish","type":"post","link":"https:\/\/serveiseducatius.xtec.cat\/baixcamp\/general\/lunivers-divers-llibre-per-conscienciar-sobre-les-malalties-minoritaries\/","title":{"rendered":"L\u2019univers divers, llibre per conscienciar sobre les malalties minorit\u00e0ries"},"content":{"rendered":"

L\u2019univers divers<\/strong><\/a>\u00a0\u00e9s el primer llibre editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 ( IRB Lleida ) per visibilitzar, conscienciar i canviar la mirada davant del m\u00f3n de les malalties minorit\u00e0ries.<\/p>\n

L\u2019autora de l\u2019obra \u00e9s mestra i logopeda de T\u00e0rrega, Alba Bellart Castellv\u00ed.<\/p>\n

Bellart \u00e9s mare d\u2019una filla amb una malaltia minorit\u00e0ria i amb inquietuds per trobar millors respostes per aquest tipus de malalties. \u201cM\u2019ha agradat escriure aquest llibre com a eina terap\u00e8utica per transmetre tot el que conec sobre el tema, perqu\u00e8 la vida de les persones i les seves fam\u00edlies puguin estar plenes de m\u00e9s esperan\u00e7a\u201d ha explicat l\u2019autora. \u201cGr\u00e0cies a la compra d\u2019aquest exemplar, contribuireu perqu\u00e8 la mirada integradora i l\u2019aposta per la recerca avancin\u201d, ha afegit.\"\"<\/p>\n

Els beneficis obtinguts per la venda del llibre, es destinaran a la recerca en malalties minorit\u00e0ries realitzada per personal investigador de l\u2019IRBLleida<\/a>.<\/p>\n

El llibre, que est\u00e0 adre\u00e7at a nens i nenes de sis a dotze anys, explica que els alumnes d\u2019una escola de prim\u00e0ria celebren Sant Jordi i fan un concurs literari dedicat a les malalties rares o infreq\u00fcents. Cada curs, des de primer fins a sis\u00e8, elabora un conte diferent, per\u00f2 amb un denominador com\u00fa, ja que tots els i les protagonistes tenen una malaltia d\u2019aquest tipus. Les il\u00b7lustracions del llibre s\u00f3n una obra de la filla de l\u2019autora, N\u00faria Us\u00f3n Bellart.<\/p>\n

\n

Segons l\u2019autora, es podria valorar aquest llibre des de dues vessants:<\/p>\n

    \n
  • Com a lectura obligat\u00f2ria en algun curs del Cicle Mitj\u00e0 o Superior de Prim\u00e0ria del centre.<\/li>\n
  • Per fer un treball d\u00b4educaci\u00f3 emocional, valors i emocions continguts en els diferents contes.<\/li>\n<\/ul>\n

    Amb alguna d\u00b4aquestes propostes es podria ajudar a aconseguir tres objectius del projecte, a part de fomentar l\u2019entusiasme per la\u00a0 lectura i s\u00f3n els seg\u00fcents:<\/p>\n

    \n
      \n
    • Visibilitzar i normalitzar les malalties rares en la inf\u00e0ncia.<\/li>\n
    • Fer un treball emocional de com poder afrontar millor una malaltia cr\u00f2nica, (malalties minorit\u00e0ries o d\u2019altres com el c\u00e0ncer infantil, diabetis\u2026).<\/li>\n
    • Promoure m\u00e9s la recerca m\u00e8dica en aquest tipus de patologies, essent benefici\u00f3s que la investigaci\u00f3 tamb\u00e9 es pogu\u00e9s realitzar en un centre de proximitat, (Institut de Recerca Biom\u00e8dica de Lleida).<\/li>\n<\/ul>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

      L\u2019univers divers\u00a0\u00e9s el primer llibre editat per l\u2019Institut de Recerca Biom\u00e8dica de Lleida Fundaci\u00f3 Dr. Pifarr\u00e9 ( IRB Lleida ) per visibilitzar, conscienciar i canviar la mirada davant del m\u00f3n de les malalties minorit\u00e0ries.<\/p>\n","protected":false},"author":1,"featured_media":12785,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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